Tuesday, May 3, 2011
It was Only a Matter of Time
Well, Sadie learned to do something new. It resulted in a very wet mother, floor and countertops. Take a look!
Friday, April 22, 2011
ECI and Other News
A few weeks ago ECI came out and evaluated Sadie. As far as her development is concerned, everything is on track and she is doing fine. However, they said that she is a very content baby, meaning she is happy with whatever toy we give her, happy to be on the floor playing on her back for long periods of time, and doesn't fuss a whole lot. Apparently for a 6 month old baby this isn't normal, so this qualifies her for ECI service. If she had been a little bit older, then Sadie wouldn't have qualified, being content is an older trait I guess. They will come back out on the 28th and we will outline a plan and come up with goals that we want Sadie to reach. They will still work on her development and push her to do new things like roll over more than she does, crawl, scoot, stand, etc. As we work with ECI we will have to watch to see if any of her development is affected by her eye sight, for instance, when she starts to crawl, does she run into things more than usual, and when she can eat finger foods, does she pick it up with her fingers and how is her accuracy? I am pretty optimistic at this point, Sadie shows some very good signs that her vision is still good. In the nighttime she is able to find her pacifier in the dark and put it in her mouth, she is accurate right now when reaching for toys. So right now, the vision specialist with ECI isn't too concerned but she told me to look out for certain things and to notify her if anything comes up. The therapy won't start for a few more weeks so we'll keep you updated as that progresses.
Sadie is doing well though, still growing. She has been on solid food for about a month now. She has tried pretty much everything, well, in stage one, and her favorites include, squash, oatmeal, and pears. But she prefers the squash. We are really not sure where she gets that from since we don't really do the squash thing. Oh well, it's a very healthy choice so I won't complain!! Her teeth are almost completely all the way through. She is also saying, "da,da,da" and "ba,ba,ba." I told Tony it's hardly fair that dad's get two consonants, d and p that could mean dad, "da and pa" and we mothers only have "m" and it's very hard to say! When I try to get her to do the m she just stares at me and sometimes will mimic my mouth movements.
Sometimes Sadie will try and hold her own bottle now but her favorite thing to do is to hold my thumb (away from the bottle) and she also tries to grab my other fingers on occasion. This makes it particular difficult to feed her sometimes. But the thumb is an every time thing and when she loses it she gets a little frantic until she finds it again. It probably won't be long before she is holding her bottle though.... :-(
I forgot to relate a story in the last blog post about one of our trips to the doctor. Sadie and I were in the neurologists office and she was sitting on my lap, the neurologist and I were looking at a paper with his notes on it and he was explaining things to me and Sadie kept looking at the paper and then at me with the look that said, "What is going on mom?" It was very cute and also kinda sad that she just didn't understand what was going on. She is such a trooper though!
We are finally getting some much needed rain. The fires have been all around us, so we have missed them, thank goodness!
As for news with Tony and I. I know some of you know that Tony had to become certified to be a composite teacher. He took that test last Saturday. We don't know the results yet. We also still don't know about cuts but they did say that they will be adding another period next year. I guess this will cut costs somehow. So Tony will be picking up another class probably. As for me, many of you know that I have been looking for a part time job. I have experienced a rainbow of emotions over this, excitement, anger, resentment, sadness etc. But it's just the way it is and sometimes you gotta do what you have to do even if you don't like it. On a different less depressing note, Tony and I will be singing at church on Sunday. Well, at first Tony was asked to sing in a men's quartet, but they couldn't find a fourth guy so I am singing alto with 3 men. We are singing This is the Christ. Other news is, after 7 months I have finally received a church calling again. I haven't been sustained yet so you will all have to sit on pins and needles for a little while. You can take some guesses at what you think it might be!! Well Sadie is helping me type this and as you can imagine she isn't much help and right now she is trying to pull everything off of the desk so this post is going to end here! The picture is of her eating her favorite food and the video is her eating her favorite toy, enjoy!
Love,
Rachel
Friday, March 25, 2011
News
It's been while since I've posted. Things got a little busy. I was running Sadie down to Dallas to doctor's appointments what seemed like everyday. But we are done with that for a little while now thank goodness.
So that brings to update everyone on the latest that I haven't talked to recently. Sadie had an MRI done to check her brain and it was normal, so for that we are grateful. It was very sad having to take Sadie to get an MRI. I am to hold her while they sedated her, wasn't so much fun. When they brought her out it was so sad too, she was starving and so cold her lips were blue! Glad that is over. Sadie also saw a neurologist and was diagnosed with Congenital Nystagmus. Unfortunately we don't know a definite prognosis but all the doctors have pretty much told me to accept that she will probably have this the rest of her life. The pediatrician said "I know no mom wants to heat that their child is a special needs child, and she won't have any mental problems, but she will have special needs when it comes to her vision." He is right no mom wants to hear that. He then begged me to not start crying there in his office. I was sick at the time and was on some cold medicine so apparently my eyes looks a little glossy. :-)
We still haven't seen the geneticist. They are waiting to get records from the ophthalmologist and the neurologist. So I am just waiting to hear back from them. The pediatrician also told me to have Sadie examined by ECI which is Early Child Intervention. They work with kids with disabilities and check their development to make sure it is all on track and if it isn't they work with the child to develop the necessary skills they need. They will come into our home and evaluate her within the next couple of weeks. This is a free service which is a blessing!
Tony and I are doing okay. Trying to take everything in stride and hoping and praying that the small chance of Sadie out growing this is on our side. It seems over the last couple of weeks she has been fixating on things pretty well and has even looked at me without moving her eyes at all! So I am hoping that is something significant.
Other than all this Sadie is doing great. I am pretty sure she is teething now. I felt her gums yesterday and felt something sharp poking through. Our little baby is growing so fast!! She goes for her 6 month well on Tuesday so we'll know her new weight and length.
Well, now what's new with Tony and I, soccer is finally over!!! This makes me happy because it means I can have my husband back. Spring is here in Texas, we've been enjoying beautiful weather and people have been out at the pool for several weeks now. This is when I wish Sadie were a little bit older so I could be at the pool enjoying the sun! We really need rain though, unfortunately we are in a drought. No rain in the forecast though for quite sometime, so until then I'll try and find the time to work on my tan! A couple of weeks ago, Tony's parents came to visit and we had a lot of fun. It's always nice to have people come visit, especially when we are so far from family and friends. We are unsure of what will happen with education in Texas. Like everywhere else they will be cutting and Sherman has to submit cuts for certain percentage cuts. The unfortunate thing is that 85% percent of the budget is in personnel, so we are sure what will be happening. It seems we are playing that waiting game with a lot of things.
I think that is all the updates. Now that things have slowed down a little, maybe the blog will be updated more! The pictures I put in this time, are Sadie sleeping a funny position that we found her in yesterday and of her playing with her new favorite toy. Hope all is well you guys!
Love,
Rachel

So that brings to update everyone on the latest that I haven't talked to recently. Sadie had an MRI done to check her brain and it was normal, so for that we are grateful. It was very sad having to take Sadie to get an MRI. I am to hold her while they sedated her, wasn't so much fun. When they brought her out it was so sad too, she was starving and so cold her lips were blue! Glad that is over. Sadie also saw a neurologist and was diagnosed with Congenital Nystagmus. Unfortunately we don't know a definite prognosis but all the doctors have pretty much told me to accept that she will probably have this the rest of her life. The pediatrician said "I know no mom wants to heat that their child is a special needs child, and she won't have any mental problems, but she will have special needs when it comes to her vision." He is right no mom wants to hear that. He then begged me to not start crying there in his office. I was sick at the time and was on some cold medicine so apparently my eyes looks a little glossy. :-)
We still haven't seen the geneticist. They are waiting to get records from the ophthalmologist and the neurologist. So I am just waiting to hear back from them. The pediatrician also told me to have Sadie examined by ECI which is Early Child Intervention. They work with kids with disabilities and check their development to make sure it is all on track and if it isn't they work with the child to develop the necessary skills they need. They will come into our home and evaluate her within the next couple of weeks. This is a free service which is a blessing!
Tony and I are doing okay. Trying to take everything in stride and hoping and praying that the small chance of Sadie out growing this is on our side. It seems over the last couple of weeks she has been fixating on things pretty well and has even looked at me without moving her eyes at all! So I am hoping that is something significant.
Other than all this Sadie is doing great. I am pretty sure she is teething now. I felt her gums yesterday and felt something sharp poking through. Our little baby is growing so fast!! She goes for her 6 month well on Tuesday so we'll know her new weight and length.
Well, now what's new with Tony and I, soccer is finally over!!! This makes me happy because it means I can have my husband back. Spring is here in Texas, we've been enjoying beautiful weather and people have been out at the pool for several weeks now. This is when I wish Sadie were a little bit older so I could be at the pool enjoying the sun! We really need rain though, unfortunately we are in a drought. No rain in the forecast though for quite sometime, so until then I'll try and find the time to work on my tan! A couple of weeks ago, Tony's parents came to visit and we had a lot of fun. It's always nice to have people come visit, especially when we are so far from family and friends. We are unsure of what will happen with education in Texas. Like everywhere else they will be cutting and Sherman has to submit cuts for certain percentage cuts. The unfortunate thing is that 85% percent of the budget is in personnel, so we are sure what will be happening. It seems we are playing that waiting game with a lot of things.
I think that is all the updates. Now that things have slowed down a little, maybe the blog will be updated more! The pictures I put in this time, are Sadie sleeping a funny position that we found her in yesterday and of her playing with her new favorite toy. Hope all is well you guys!
Love,
Rachel
Wednesday, February 16, 2011
Once Upon a Time.....
Sadie really wanted to tell everyone a story. Hope you enjoy it! The picture I attached we entitled, Sadie the Destroyer.
I know everyone was real worried about our cold weather, but don't worry, it's been in the 70s all week. I even had to turn on the a.c. a couple of times to cool it down.
We go to the pediatrician again on Monday to decide whether or not we need to do something for Sadie's eyes. I will keep you posted!
The video I really wanted to upload was too large so here is another one, it isn't as good, but we'll work on getting another video of her talking.
I know everyone was real worried about our cold weather, but don't worry, it's been in the 70s all week. I even had to turn on the a.c. a couple of times to cool it down.
We go to the pediatrician again on Monday to decide whether or not we need to do something for Sadie's eyes. I will keep you posted!
The video I really wanted to upload was too large so here is another one, it isn't as good, but we'll work on getting another video of her talking.
Wednesday, February 2, 2011
Winter Storm
I know most of you have been very jealous of the weather we've been having. 70 degree weather just ins't fair in January. Well, don't worry, winter finally caught up with us and Tony has been on a snow day for the last two days.
We finally got Sadie to start sleeping, however, the pounding of ice against our windows kept us up all night anyway! We received about 3 inches of snow and ice and we live in a place where it doesn't get cleaned off very quickly. We have had chilly temperatures as well and winds that take us below zero. So Texas isn't a happy place to be right now.
The pictures below are pictures of ice inside, yes, inside of our windows! Our apartment isn't insulated very well so we are all quite cold. The manager of the complex will most likely receive a complaint. Thank goodness it's supposed to be in the 50s by Sunday, so just a few more days of this bitter cold!
Thursday, January 27, 2011
Sadie's Checkup
On Monday I took Sadie to the pediatrician for her 4 month well. She received her immunizations and as you can imagine, didn't like it very much. I am happy to report that Sadie is a very healthy baby and is definitely not a starved child. In two months she went from being in 75th percentile for weight to the 90th percentile! She now weighs 15 lbs and 8.5 oz and is 25" long. In two months she gained 4 pounds and grew 2.5 inches. As you all know, Tony is getting his wish for a fat baby.
The pediactrician did say we need to keep watch on her eye movement. She was moving them around quite a bit in the office and he was concerned that she may have wandering eyes which could lead to a lazy eye and monocular vision. He said if caught early it is treatable. So I am currently on the look out for that. We certainly hope this is not the case. We started Sadie on rice cereal. Down below are some pictures and some videos we have taken over the last month.
As for the sleeping thing, we are making a little progress. I have found a way to put her down for naps and she sleeps for 2 hours! Which is a huge step considering she only slept previously for 30 minutes at a time. My trick is to bounce her while I sit on my exercise ball. It knocks her out in half the time and lulls her into a deeper sleep quicker. We are still working on the nighttime sleeping. Our doctor explained that babies have a sleep cycle of deep sleep for 2-3 hours and then a light sleep, when they are in the light sleep cycle they have the potential to wake up easily. This is what is happening with Sadie and she has forgotten how to put herself to sleep. The doctor gave us a few ideas but said it is really hard to give sleep advice because all babies are different and need different things. He said they had to do something different with each of their babies. So, I guess we will be experiementing over the next little while. It's a good thing I like experiements! Although I could really use some sleep!!
Those are the updates for now. Hope all is well with you!
Love,
Rachel
The pediactrician did say we need to keep watch on her eye movement. She was moving them around quite a bit in the office and he was concerned that she may have wandering eyes which could lead to a lazy eye and monocular vision. He said if caught early it is treatable. So I am currently on the look out for that. We certainly hope this is not the case. We started Sadie on rice cereal. Down below are some pictures and some videos we have taken over the last month.
As for the sleeping thing, we are making a little progress. I have found a way to put her down for naps and she sleeps for 2 hours! Which is a huge step considering she only slept previously for 30 minutes at a time. My trick is to bounce her while I sit on my exercise ball. It knocks her out in half the time and lulls her into a deeper sleep quicker. We are still working on the nighttime sleeping. Our doctor explained that babies have a sleep cycle of deep sleep for 2-3 hours and then a light sleep, when they are in the light sleep cycle they have the potential to wake up easily. This is what is happening with Sadie and she has forgotten how to put herself to sleep. The doctor gave us a few ideas but said it is really hard to give sleep advice because all babies are different and need different things. He said they had to do something different with each of their babies. So, I guess we will be experiementing over the next little while. It's a good thing I like experiements! Although I could really use some sleep!!
Those are the updates for now. Hope all is well with you!
Love,
Rachel
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